Where do we go from here?

It’s been a while since my last post. We have been busy implementing the new medication plan, desperately trying to get Harrison’s condition under control and its been such a tough few weeks. Everything is new territory for us; new signals, warning signs, patterns, different behaviours, different seizure characteristics – it’s all completely new.

He had a few seizures whilst we were at work too, so we had to get a full time dog-sitter in which is very expensive, but we thought we’d stick with it for now whilst we try to get things to a manageable level at least and were advised by the neuro to minimise stress* as much as possible (*separation anxiety). The aim being to reduce the dog-sitting hours over time as his seizures strike less often.

I’m afraid we’re not quite there yet though, things are still very much in progress. We’ve not managed to reach a good stable, control level with his meds and have to keep fine tuning things. But overall, it is not looking good at the moment.

We’re pleased that his seizures have definitely become less violent, he recovers more quickly and he is only suffering 1 at a time now, rather than clustering into several. Which is good progress. But the frequency remains too often still, with seizures occurring every few days. Even the specialist is concerned and surprised by the fact he keeps on having seizures with all the meds he’s on. He’s a unique specimen that’s for sure! Poor little boy.

We’d already accepted when we started with the specialist early September that by Christmas we believe this will be sorted one way or another, his condition will either be under control or he wont be with us any longer. Its horrible to think like that, but I think we have already come to terms with it now. I am feeling less optimistic than before, as the specialist is so surprised his fits continue 😦

Resetting the seizure counter back to zero

Yep, today was one of those days unfortunately. After an 18 day break since the last fits, Harrison suffered a couple more. He is resting now after the usual hour of pacing about wanting to eat the world.

He’s been a little tinker both yesterday and today, which makes me wonder whether this led to the seizures. Yesterday he’d gotten into my handbag and eaten some homemade fudge and today he’d had 3 overripe bananas (including skins) off the kitchen counter. Which he has never done before and they’ve always been sitting there on the side, out of his reach we thought but obviously not! Sometimes I have avocados ripening too, so thank goodness they weren’t in there as avocado isn’t very good for dogs, especially not the stones, which he would have undoubtedly eaten!

We’re going on holiday 1 week today, was hoping not to have any more seizures before we go but that’s the nature of the beast. Dreading leaving him 😦 we’re leaving him in safe hands, in our own home so minimal disruption for him.

His annual vaccines are due as well, I’m going to put them off for as long as possible but also ask whether we can have a waiver for a while, until we manage to get into a bit more of a routine with him. The fewer things that could cause or lead to a seizure, the better really.

I hate this illness so much! When there’s been recent activity it makes you question everything. Are we really doing the right thing to try and medicate him and tame this beast?

 

 

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(hopefully) it’s just a blip

Harrison had another couple of seizures last night unfortunately, just after 18:00. He’d vomited his breakfast in the morning, but re-ate it so we weren’t concerned he didn’t get his medication. Hope things settle down soon, we’re supposed to be going away on 6th September, seriously won’t even feel like it if this recent spate of seizures doesn’t subside.

As usual, he paced around restlessly for about an hour after the seizures and we’d given him 50mg of diazepam to break the cluster, but then chilled out and we didn’t encounter anymore issues during the night which is great! Let’s hope for a trouble-free weekend now, what’s left of it.

Since we added in libromide to his medication mix last Monday he had been encountering some adverse side-effects, which have subsided a little thankfully (vocalisation, restlessness), but it can still take a little while for the medication to reach the therapeutic serum range and provide that stabilising effect we really need at the moment. This is very much a matter of patience, not expecting miracles overnight and managing as best you can in the interim. It’s so hard to see your beloved dog go through this though and breaks my heart reading about all the lovely pets who have to be put to sleep as a result of their epilepsy or associated conditions on some of the Facebook groups I mention on the RESOURCES & INFO page of my blog. My heart goes out to all of those people who have lost their pet due to this awful condition. It made me wonder about what humans who suffer with epilepsy have to endure as well, how awful. At least you can explain to humans though once they’re old enough, so they know what’s going on. The worst thing for Harrison is how frightened he is immediately before and afterwards, poor little baby.

One of the founding members of the Facebook groups has setup a couple of fundraising pages. One is to support those who can’t afford a neurological consultation and the relevant  tests etc, as not covered by their insurance or they don’t have any. The other is to raise a bit of money to setup a service to raise awareness, knowledge share, advise and guide others who are managing this condition with their pets. To support them in asking the right questions and knowing when to be firm or assertive and challenge their vet where needed etc. No one knows your animal like you do, even if you don’t have the veterinary knowledge, you are the one who speaks for them and has their best interests in mind. I found this element quite challenging when all the info we were receiving was conflicting. But essentially, not many vets or neurologists are specialised in epilepsy and eventually that’s what you become, with enough time dedicated to research and learning about the condition and treatment. Please see links below to the fundraising pages in case of interest and you’re feeling generous! 🙂

Rusty’s Memorial Neuro Consult Fund

Canine Epilepsy Awareness

 

Google Vet

I like research. I’m a geek, I like to hunt for information, gather lots of facts and learn from other people’s experiences as well as my own. This way, I feel like I can build a better understanding of what is going on, but also be in a position to ask the vet better questions to ultimately help Harrison and manage this condition to the best of my abilities.

But you do need to be really careful what you read online and approach with skepticism. I remember the behaviourist at the Dogs Trust offering the same advice regarding  training when we first brought Harrison home back in October 2015. She just explained to be wary of bad advice. Over the years research, theory and treatment can advance a lot, so what may have been standard a few years ago may not be the case any longer.

I think the veterinary professionals can be wary too when you ask questions about things you have read online which could be triggers, causes etc. Essentially every dog is different anyway, so in a way you need to just think of it as a blank slate and create your own records and experience log.

At the beginning, some of the things I read online were terrifying and made the whole situation even more daunting. I really feel for some of those I still read about who’s furry companions are suffering very regular seizures, even whilst heavily medicated.

I joined a couple of Facebook groups too, to seek advice and talk to others experiencing the same with their dog(s).  There you get to see other group members painfully sharing final posts and leaving the group,  as they’ve had to have their dog put to sleep. They always thank the group and state how helpful its been to be able to talk and discuss their situation with others going through the same. I would say its more for catharsis, like a kind of a group therapy than to really share tips or experience. Of course that happens as well, but I think ultimately you need to let the veterinary experts guide you correctly when it comes to your dog anyway.

I wanted to share some things I have learned that I wish I had known right at the start;

  • I know this is so much easier said than done, but try to remain calm, although horrific to witness the seizures are generally not harmful. Try to protect their head to avoid them banging it on anything during convulsions and be prepared for them to eliminate during the seizure. They may urinate, defecate or release their anal gland, or all 3…! Believe it or not, the seizures do get easier to deal with, whether this is from being desensitised or you just better at coping and less shocked with it all I don’t know, but you wont feel like a cry baby about it forever – promise!

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